Jack’s Home Health Care Story – Spinal Muscular Atrophy (SMA) Awareness
Jack Freedman has accomplished a great deal in his 17 years. He is a published author and has presented at health care conferences. He has mastered the use of technology that allows him to communicate with his friends and family. And, he has defied the odds set by his physicians when he was born with spinal muscular atrophy (SMA), an often fatal disease that destroys the nerves controlling voluntary muscle movement.
Of the more than 6,000 days of his life, more than 4,000 have been spent receiving care and support from a BAYADA Nurse at home and school. “Everybody who cares for families like ours needs to remember that we’re scared,” said Albert Freedman, PhD, psychologist, and Jack’s father. “We’re scared every day. And we need help. Every time someone from BAYADA helps us, they are making us feel supported, and less scared, and more hopeful that we can take care of Jack responsibly and that we can give him a life that’s meaningful.”
Click here to read more about Jack and SMA: http://blog.bayada.com/bayada-news-blog/bid/193024/Hope-during-Spinal-Muscular-Atrophy-SMA-Awareness-Month